I wasnt sure whether or not i wanted to post this but i have had so much support over this last flare up and i wanted to show you guys what its like for me ❤️🔥♿️ #chronicillness#flareup#skincondition#illnessjourney#pots#mcas#perfectlyimperfect#hairloss#burn
I think the hardest thing is the not knowing. Doctors baffled at my medical files as to why this happened to me. Having to wait and just hope that they have got this right having to wait to see specialists who could lead me back to square one . Being left in excruciating pain day after day my story being put in papers and social media to hope someone who sees this can help me and know why this is happening but I’ll fight i will keep fighting for 15 year old me who was ashamed of her skin #chronicillness#perfectlyimperfect#skinflareups#medicalmystery#anaphylaxis#skincondition#pots#chronicpain#mcas#reactions#unknown#ambulatorywheelchairuser
This is my story💜living with a condition that is so severe and rare that doctors have called me a medical mystery ! You can watch the full video on YouTube and other platforms 🫶#chronicillness#flareup#raisingawareness#skincondition#illnessjourney#chroniccontent#hairloss#wigs#ambulatorywheelchairuser#foryou#pots#anaphylaxis#mcas@Truly Show