bad tic night, filmed 23rd of May, my dystonia is much better & i had 2 rabbits then😞 #PANS #tourettes #tics #tourettesawareness #awareness #ticsawareness #autoimmunedisease #PANSawareness #braininflammation #dystonia #foryou
genuinely shocked this was caught on camera since this tic hasn’t happened for months🙈going from the footage, my eyes were stuck for EXACTLY 5 MINUTES🙈👀it felt like hours. what an experience😅 #foryou #tics #tourettes #PANS #encephalitis #tourettessyndrome #ticsawareness @Peter
life of a late stage lyme patient with encephalitis🙁💊 #lymedisease #encephalitis #AE #autoimmuneencephalitis #lymediseasewarrior #fyp #foryou #awareness #basalgangliaencephalitis #autoimmunedisease #autoimmuneepilepsy
‘alright geezer’ is one of my strongest echolalia tics that i literally cannot supress repeating😅dobby likes this tic🤣 (theyre not making fun of me before anyone says, we make light of it sometimes and they’re some of the only people i’d let do this)@Dobby@Max And Harvey #tourettes #tourettessyndrome #echolalia #fyp #alrightgeezer
waiting rooms can be really uncomfortable for someone with Tourette’s. i was supressing here which is why there’s a lot of facial tics, this happens when i supress bigger tics. i also knew i was going to have to sit still for my appointment which was making them worse.💙 #tourettessyndrome #tourettes #tourettesawareness #fyp #foryou #awareness #advocate #ticloudandproud
Replying to @ELYA-🫵🏻😑 i am always sick, even when i look okay💗 my holiday was amazing, i loved it, but i struggled a lot more than i shared on social media. its important to remember that what we see on social media, is only a small part of what the creator wants us to see. its easy to edit things out, not talk about things etc…. i didn’t talk about how i cried in the streets of Amsterdam because i was sick of being in a wheelchair and wanted to walk with my family, i didn’t talk about the hallucination i had of a baby pink balloon coming right at my face that actually made me flinch and put my hands up. i didn’t talk about how anxious i was to go to another country, i didn’t talk about how much i hated my body and my legs for not working properly on that holiday. i’m sharing this now bc i think it’s important. i have many good moments now thanks to treatment doing its thing, but its not perfect💗💗 #efteling #reality #lymedisease #encephalitis #PANS #autoimmuneencephalitis #bartonella #autoimmunedisease #awareness #foryou #fyp #advocate
still in shock & denial. i’ll be grieving for a long time but i’ll try have some happier posts coming soon. i know my instagram is all rabbit stuff atm but this is such a huge loss for me. my beautiful giant. nothing can ever fill the hole you have left. letting you go was one of the hardest things i’ve ever done in my life. i love you always, thank you for everything🤎🪽 #petloss #grief #rabbit #petgrief #petgriefisrealgrief #petlosssupport #foryou #rabbitmum
idk thought this might be funny🤣 for those unaware, dystonia is a medical condition which causes painful and involuntary muscle contractions. this can last hours, days, weeks, months or even years. my longest dystonia flare was 5 months with muscle contractions in my left hand. my dystonia is caused by inflammation in my brain and is a very common symptom for me!❤️🧠 #dystonia #fyp #humor #chronicillness #dystoniaawareness #foryou #autoimmuneencephalitis
finally addressing this question! can you see the difference?🤔 #PANS #PANSawareness #tics #tourettessyndrome #tourettes #autoimmunedisease #autoimmuneencephalitis #foryou
im 24 this year, dont think this is too much to ask😶🤍 #remission #mydreamsarejustdreams #encephalitis #healthjourney #lymedisease #braininflammation #reovery
yesterday @Seren | Otters Have Pockets 🦋 surprised me after not seeing eachother for nearly 3 years. fair to say i was a bit speechless🙈took me ages to process it 🤣i love this human with all my heart💗 #fyp #foryou #surprise #tourettes #tourettessyndrome