Replying to @Miriama Jamnicka it was really hard to suppress the motor tics & jerks during the scan and it wasnt perfect but they said i did well💙 #tourettes #tourettessyndrome #foryou #tics #PANS #tourettesawareness
excuse my appearance lol but watching tv can get me frustrated when my tics are active because like anyone, i want to watch it in peace. it’s like having a constant annoying child 🙈 #tourettes #tourettessyndrome #PANS #tics #tourettesacceptance #tourettesawareness #fyp #advocate
so…i absolutely love @BeakerBeak however my echolalia & tourettes also loves him😅send help my tourettes thinks its a bird #tourettessyndrome #echolalia #beakerbird #fyp #tourettes
Replying to @Fixer the concentration place my mind goes to during gymnastics is my safe place. everything else goes away💜🫶🏻✨#tourettes #tourettessyndrome #gymnast #gymnastics #tourettesawareness #foryou #foryoupage
i love this dance and really wanted to do it but my legs have declined even further. but i thought why not do it anyway🙈♿️💜 dc: @Dilen De Zilva #wheelchairdance #encephalitis #braininflammation #wheelchairuser #dance #trend #foryou #autoimmunedisease
this really does work, i get them all down quickly without even thinking about it. usually i do it slowly bc i get so fed up with it. new antibiotics coming on monday!🤎a change is very much needed so hopefully we’ll see a difference 🤞🏻 #autoimmuneencephalitis #chroniclymedisease #bartonella #babesia #mycoplasmapneumonia #basalgangliaencephalitis #autoimmunedisease #fyp
meghans songs never miss🤪 hehe this is the last wheelchair dance you’ll see with this chair! my new one is here🤭 @Meghan Trainor #lymediseasewarrior #wheelchairuser #footdrop #autoimmuneencephalitis #wheelchairdance #fyp
absent seizures can present differently, there may be lip movement/smacking, rapid blinking or no blinking, eye movements or none, facial twitching or none, dilated pupils or normal, sometimes really obvious sometimes not…🧠 #inflamedbrain #autoimmuneencephalitis #pandaspans #basalgangliainflammation #pandaspanswarrior #seizure #absentseizures #awareness #absentseizuresawareness
i hate having to take so many meds, i find it so draining even tho its such a tiny task out of my day. also makes me sad wondering how i got to this point. but its all to help me🤍💊 #autoimmuneencephalitis #bartonella #babesia #lymedisease #mycoplasmapneumonia #encephalitis #bartonellaawareness
oof this is deep. can’t decide if i love this trend and seeing people finally bringing some realism to social media or if it’s so sad. bit of both ❤️🩹 #trend #fyp #autoimmuneencephalitis #deepthoughts #foryou #autoimmunedisease #mentalhealthmatters #MentalHealth
horrible humans. (all these people faked a terminal or severe illness to con people and scam gofundme) i do not have a terminal illness but i do have a severe illness and how anyone can pretend to suffer and claim to know what it’s like is completely beyond my comprehension. the woman in the wheelchair on the 5th slide pretended to have muscular dystrophy and that she was paralysed🤯#fyp #fakeillness
get ready with me for a concert💞 im soooo anxious it’s ridiculous but im not going to let PANS ruin this for me. #grwm #jamesarthur #makeup #concertmakeup #makeuplook #autoimmunedisease #foryou #dystonia
taking all my piercings out, some skin care & a mini update. goodnight❤️🫶🏻✨ #autoimmunedisease #encephalitis #spinemri #piercings #seizures #foryou #tourettes #basalgangliaencephalitis #healthjourney #awareness #advocate