🌺🌱evie meg🐰✨

an episode i had with @Max last october😅(i set my camera up 30 mins before this as i knew something was coming) i’m glad i did bc i love having moments like this on camera, i’m so lucky to have the best people around me ♥️🫶🏻 #braininflammation #awareness #encephalitis #PANS #myoclonicseizures #seizureawareness #encephalitisawareness #autoimmunedisease

sometimes i wake up and my illness has done something to my body overnight. it’s just the way it is but i gotta roll with it. here’s how i go about my day on a severe dystonia day 🤎 #disabilityadvocate #autoimmuneencephalitis #braininflammation #encephalitis #fyp #awareness #dystonia

when i tell you this train was packed- i mean p a c k e d😳😅but, this is who i am so no point hiding away at home🩵 #tics #PANS #tourettessyndrome #encephalitis #braininflammation #ticsinpublic #awareness #foryou #advocate

hasn’t been easy for me to do this but we now have a gofundme up and running❤️i have my first ever infusion coming up and already we have covered the cost of that i am feeling extremely loved❤️read more about my story and why we’re fundraising on the gofundme page🫶🏻 no pressure on anyone at all, this is clashes with my nature but the link is in my bio if you would like to❤️thank you wonderful people✨ #foryou #encephalitis #fundraising #treatment #encephalitisawareness #seizures #dystonia #braininflammation #advocate #bartonella #healthjourney

Replying to @uncle.moonshine well dont you look silly🤣i love my chair, without it i’d miss out on so much❤️ #foryou #hatecomment #ableism #wheelchair #autoimmuneencephalitis #ambulatorywheelchairuser #disabled #chronicillness #encephalitis

shh 🤫💋 #signlanguage #britishsignlanguage #BSL #fyp @Charis 🌿 #bluehair #signlanguagesong #foryoupage

no im not overly cautious, literally having a cold could take away my speech🥲 #autoimmunedisease #trend #isaidwhatisaid #fyp #encephalitis

i have a great team😅💜 havent seen anyone do this and thought it was quite fun #disabled #rating #foryou #encephalitis #wheelchair #wheelchairuser #ambulatorywheelchairuser #foryoupage

my most viral video ever, 3 years ago today🙈❤️✨#onthisday #tourettessyndrome #tourettes #fyp #awareness #pandaspans

how was this 2 years ago?! this weekend was too much for me but my lovely Seren made it worthwhile 💞 #onthisday #tourettes #tourettessyndrome #fyp #tourettescamp #tourettesawareness #panspandas

harvey a little too excited about lesbo island🤣@Harvey #awareness #tourettessyndrome #braininflammation #pandaspans #tourettes

very short video but makes me chuckle 🤣#braininflammation #tourettes #tics #foryou #tourettessyndrome #positivityinlife #disability #invisibledisability #PANS

i found this video from august. bit of a weird one, i cut out atleast 5 minutes of rapid eye movements👀 this is a seizure type episode from a condition i’m diagnosed with called Autoimmune Basal Ganglia Encephalitis 🧠 #braininflammation #awareness #advocate #PANS #encephalitis #seizure #myoclonicseizures #seizureawareness #encephalitisawareness

i love all the videos under this sound🤣 hoodie is made by me available on my website🥰💞 #tourettes #trend #trending #foryou #tourettessyndrome

i see you😏 #fyp #neurodivergent #trend

part 3! final part coming soon😅💧 VD: me and my friend Peter doing the challenge where you take turns pouring water into a glass blindfolded until it’s full🙈 #foryou #fyp #fillglasschallenge #waterchallenge #BestFriends #blindfolded

seizures in public. i hate it but unfortunately it’s just what ive been forced to get used to, and my mum is great at managing these situations❤️(i had a very long warning before hand so i knew it was gonna happen like an hour before) #seizure #autoimmuneencephalitis #inflamedbrain #seizureawareness

Replying to @lolasmithand8x i have sporadic symptoms, meaning my symptoms such as dystonia, partial paralysis etc comes and goes. however it can stay for months at a time. I have periods of feeling okay, then one small infection and it all comes crashing down again. It’s extremely exhausting and disheartening . it’s so hard for people to understand why i’m in her wheelchair or using crutches and sometimes I’m not but that’s okay. i know the truth and that’s what matters🖤 #disabilityadvocate #dynamicdisability #autoimmuneencephalitis #PANS #encephalitis #braininflammation #foryou

TW be careful what you say. and number one rule, don’t ever ever comment on anyone’s weight ❤️‍🩹 #foryou #panspandas #encephalitis #autoimmuneencephalitis #braininflammation #fyp #bekind #MentalHealth

enjoy part 1 of the water challenge🤣🙈plenty more to come #fyp #waterchallenge #fillglasschallenge #foryou